Article (in German) by ALAN's director, Marc Ries, published on the 17th of february 2018 in the Lëtzebuerger Journal.
On the 26th of february, RTL TV showed a report about rare diseases with interviews of Noémie Sunnen and Shirley Feider-Rohen, the president of ALAN.
Watch the video here.
On the occasion of the International Rare Disease Day 2018, ALAN - Maladies Rares Luxembourg organized a big Quiz Night with Geert Van Beusekom and Joseph Rodesch, alias "Mister Science" at Kaerjenger Treff, Bascharage (L).
You can now view the photos from the event on our Facebook page.
We wish to thank everyone that participated, especially all our volunteers, our sponsors and the photographer, Henri Goergen