ALAN - Maladies Rares Luxembourg presented its Annual Report 2018 at the Ordinary General Assembly on 25 April 2019 in Mamer. In 2018, ALAN celebrated 20 years of commitment to people affected by a rare disease. Last year, the association supported more than 300 patients and their relatives with psychosocial counseling sessions and a program of recreational activities adapted to special needs. ALAN noted a 26% increase in requests for administrative, social or psychological support compared to the year before. 2018 marked the official launch of the first National Plan for Rare Diseases, in which ALAN participates by contributing to various working groups. At the international level, the association focussed primarily on raising awareness for rare diseases and the networking of patient groups.
The Annual Report 2018 is available here.