Do you live with a rare disease?
Is one of your relatives affected by a rare disease?
Are you a healthcare professional taking care of a patient with a rare disease?
By contacting the Infoline Maladies Rares Luxembourg you can:
receive information about the disease, the social rights, the available resources and the procedures to follow;
be referred to the appropriate services within the country;
talk to professionals with experience in the field of rare diseases.
The Infoline Maladies Rares Luxembourg is managed by ALAN – Maladies Rares Luxembourg, a non-profit organisation, as mandated by the Directorate of Health. This is an initiative of the first National Plan for Rare Diseases
2018-2022 launched by the Ministry of Health.
The Infoline is organised into a dedicated phone (+352 2021-2022) and e-mail address (infolineMR@alan.lu), which is operational within defined time slots (Monday 14:00-17:00; Tuesday 12:00 to 15:00, Wednesday 09:00 to 12:00, Thursday 12:00 to 15:00, Friday 09:00 to 12:00). A reply is guaranteed within 5 working days.
The Infoline does not provide counselling or diagnostic services.
In collaboration with: