Members - Luxembourg


Why should I become a member ?

ALAN is a recognised patient advocacy group for rare diseases.
By becoming a member of ALAN:
  • You will become part of a national an international (EURORDIS) network dedicated to rare diseases.
  • You will regularly receive information about the association’s activities and new developments within the rare disease community in Luxembourg.
  • You will be invited to join the social and recreational activities of ALAN.
  • You will contribute to raising awareness for the challenges of living with a rare disease. 
  • You financially support an organisation that helps people and families living with a rare disease in Luxembourg
Today ALAN has more than 400 members; mostly individuals living with a rare disease, families and friends, volunteers and sponsors.


Types of membership

ALAN offers personal and family membership cards.
Everyone that fills in the application form and pays the annuel fee automatically becomes an “affiliate member”. Affiliate members can participate in the ordinary and extraordinary general assembly, but they do not have the right to vote.
An affiliate member can become an “active member” by sending in an application letter to the president of the administrative board. Actif members have the right to vote at the ordinary and extraordinary general assembly. They may also nominated themselves and become member of the administrative board.
For more details, please take a look at ALAN’s by-laws.

How do I become a member?

You can join ALAN and make your voice heard in 2 short steps.
1. Complete this form.
2. Pay the annual fee of 15 € for personal membership or 20 € for a family membership card, either via PayPal:

Personal membership


Family membership

or via traditional bank transfer:
  • CCPL LU95 1111 0004 2638 0000
  • BCEE LU89 0019 1300 5184 5000
  • BLUX LU30 0080 3239 1490 2001
Together we are stronger. Thank you !