ALAN - Rare diseases Luxembourg - Luxembourg
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  • Together, never alone
    with your disease



    NEWSLETTER




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Alan

News - COVID-19 and rare diseases – Message from Dr Michel Hoffmann

Because of the uncertainty and misinformation regarding COVID-19, we asked Dr Michel Hoffmann, if there are any particular precautions that people living with a rare disease should be taking during the current pandemic.

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Alan

News - Changes due to COVID-19 pandemic

Following the newest government guidelines regarding the COVID-19 pandemic, all our psychological and social consultations will be carried out exclusively via telephone or secure video conference until further notice. All of ALAN’s recreational activities (yoga, swimming, horse therapy) have also been cancelled until further notice.

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Alan

News - ALAN receives European award for its commitment

On the 18th of February 2020, ALAN – Maladies Rares Luxembourg received a Black Pearl Award from EURORDIS, the European alliance of organisation for patients with rare diseases. 

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Alan

News - Rare Disease Day 2020

For the international Rare Disease Day 2020, ALAN is organising the fifth edition of its big Quiz Night, on 29 February 2020 at the event hall in Holzem. 

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Alan

News - Launch of the " Infoline Maladies Rares Luxembourg"

As part of the first National Plan for Rare Diseases 2018-2022, the Ministry of Health launched the "Infoline Maladies Rares Luxembourg", a first line of support, information and consultation for people affected by a rare disease, their loved ones and healthcare professionals.

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Alan

News - Annual Report 2018 : 20 years of commitment

ALAN - Maladies Rares Luxembourg presented its Annual Report 2018 at the Ordinary General Assembly on 25 April 2019 in Mamer. In 2018, ALAN celebrated 20 years of commitment to people affected by a rare disease...

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Alan

News - ALAN celebrates its 20th anniversary

In the framework of its 20th anniversary, the nonprofit organisation ALAN called upon Mr Frank Rosch to create a short film featuring the stories of individuals and families suffering from a rare disease.

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