Our objective is to improve the quality of life of individuals (children, youth, adults and families) who are affected by a rare disease. By working closely together with people living with a rare disease, we are determined to achieve our common objective.

That is why,

• ALAN proposes socio-therapeutical aid and psychological counseling,
• ALAN offers a variety of recreational and sporting events,
• ALAN regularly shares information about rare diseases with the public, policy makers and public institutions,
• ALAN is involved in the development of a National Plan for Rare Diseases to guarantee equal access to diagnostics, therapy, care and research for all individuals living with a rare disease.
• ALAN collaborates closely with national health and social institutions.
• At an international level, ALAN advocates the dissemination of information, the networking of patient groups, raising public awareness and research.