In February 2024, the consultation service of ALAN Maladies Rares Luxembourg received the “EU-Promising Practice in the field of Mental Health” label in recognition of its holistic approach to psycho-social...
On the 29th of February 2024 we celebrate the 17th Rare Disease Day, a day dedicated to raising awareness about rare diseases and their impact on the lives of those...
D’a.s.b.l. ALAN – Maladies Rares Luxembourg sicht, fir säin Team ze verstäerken, een diploméierte Psycholog/ Psychotherapeut (m/w)...
Our offices, including the Infoline Maladies Rares Luxembourg, will be closed from the 23th of December 2023 to the 2nd of January 204. We wish our whole community serene holidays among...
This year, ALAN celebrates its 25th anniversary. To celebrate this milestone, the association organized an academic session at the “Kinneksbond” Cultural Center in Mamer, on the 20th of September 2023...
The EURORDIS Rare Barometer survey on the diagnostic odyssey of rare disease patients shows, among other things, that in Luxembourg: • it takes 5 years on average between the appearance of...
In 2022, ALAN received almost 700 requests for support from people affected by a rare disease, representing around 300 different diseases. The annual report, presented at the recent General Assembly,...
For Rare Disease Day 2023, the national alliance representing people affected by a rare disease in Luxembourg, ALAN – Maladies Rares Luxembourg, has published a position paper with its partners....
To fight the prejudices that people living with a rare disease have to face, ALAN and its partners have launched a new communication campaign in September 2022. The slightly provocative...
In 2021, ALAN supported 562 patients and families affected by a rare disease, representing 241 different diseases. The activity report, presented at the recent general assembly, shows that the number...
